Funding for this research is incredibly important for families like ours. We have so many unanswered questions and hope that one day, we’ll have a little more knowledge of what the future holds for Ruby and other kids affected by rare chromosome disorders. Please take a moment to check out Xtraordinary Joy and the wonderful work they are doing in this area. If you are able to donate, we would be so grateful! Every little bit helps. 
 

Xtraordinary Joy is the only organization providing research and outreach for Xq27-Xq28 Deletion. With just over 40 families worldwide, if we don't fund this effort, who will? Please help us spread JOY by donating to this campaign for lifesaving research that contributes to understanding of intellectual impairment, autism, epilepsy, hypotonia, mitochondrial dysfunction and more. Thank you for JOYning our family in support of our Xtraordinary kiddo and community.